Patient & Public Involvement Co-ordinator, Children’s Palliative Care

Join to apply for the Patient & Public Involvement Co-ordinator, Children’s Palliative Care role at King's College London

Patient & Public Involvement Co-ordinator, Children’s Palliative Care

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Join to apply for the Patient & Public Involvement Co-ordinator, Children’s Palliative Care role at King's College London

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About Us

King’s College London is a leading University with nine Faculties. As part of King’s Health Partners, we have an excellent environment for health care interaction and a strong focus on mentoring and career development.

About Us

King’s College London is a leading University with nine Faculties. As part of King’s Health Partners, we have an excellent environment for health care interaction and a strong focus on mentoring and career development.

The 2021 Research Excellence Framework (REF2021) placed King’s applied and allied health research 1st for: overall proportion of research rated 4* (world-leading, the best mark possible), research papers rated 4*, impact rated 4*, environment rated 4*(joint), Grade Point Average and Power. REF2021 rated as world-leading: 100% of our environment, 86% of our impact and 70% of our research overall. Over 95% of our research overall was rated as world-leading or internationally excellent.

As of 2025, our Faculty is number 1 in the world for Nursing (QS world rankings). King’s produces more highly cited research outputs (top 1% citations) on palliative care than any other centre internationally (SciVal), and is second in the world on the same metric for nursing and midwifery. King’s is the largest provider of health care education in Europe.

The Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care (NMPC) is based in the heart of central and south London. It includes the Cicely Saunders Institute for Palliative Care, Policy & Rehabilitation, the premier Institute for Palliative Care, bringing together clinical, research and education teams.

Our applied clinical and health multidisciplinary research transforms therapies, the healthcare experience and outcomes for patients and those important to them, wherever they are cared for. Our award-winning NMPC education programmes span pre-registration nursing and midwifery, and multidisciplinary post-graduate taught and research programmes.

We are committed to staff development, and offer opportunities to identify and access appropriate training and professional growth.

About The Role

We are seeking an enthusiastic and dedicated parent of a child with a life-limiting condition to co-lead a parent advisory group of around 20 parents of children with life-limiting conditions or medical complexity. The role is open to parents currently caring for a child with a life-limiting condition and bereaved parents. The post is part time (20% FTE) for 2 years initially and is funded by the True Colours Trust.

We are looking for someone who can make a distinctive contribution to the Cicely Saunders Institute and our growing children’s palliative care research group and drive forward collaborative, sustainable high quality and impactful PPI. Our aim is inclusive involvement that celebrates diversity and maximises opportunities for the public and community to influence our research.

The primary responsibility will be to co-lead a parent advisory group of around 20 parents of children with life-limiting conditions or medical complexity. The role includes supporting and facilitating patient and public involvement in children’s palliative care by providing advice and support for researchers, clinicians and public contributors and organisation of public involvement activities with researchers and public contributors. You should have excellent communication, collaboration skills, facilitation skills and organisation skills.

We will ensure you are well supported in the role, and that you have flexibility around your caring responsibilities.

The post-holder will work with Dr Bethan Page and Professor Lorna Fraser and the wider children’s palliative care research group.

The job is a remote contract, with a travel budget for occasional in person meetings and events.

This is a part time post (7 Hours per week), and you will be offered a fixed term contract until 31st August 2027.

King’s considers the professional and personal development of our staff a priority and we offer an inspiring range of opportunities for training and career progression. Our Organisational Development team provide in-house and bespoke learning.

About You

Essential criteria

• Experience as a parent of a child with a life-limiting or life-threatening condition (this includes bereaved parents)
• Excellent written and verbal communication skills, including strong facilitation skills, with sensitivity to the emotional needs of the parent group
• Excellent interpersonal and relationship building skills, with public members, researchers and external networks
• Sensitivity, a high level of awareness of confidentiality, and general tact and diplomacy
• Strong organisational and planning skills, with a proven ability to coordinate and deliver projects
• Ability to work independently and manage time effectively
• Committed to advancing equality, diversity and inclusivity in all aspects of work
  
  

• Experience of public involvement in research, including advising researchers and facilitating public contributors
• Proven ability to share research findings in accessible formats for diverse audience, including through summary reports, blogs and oral presentations
  
  

Seniority level

• Seniority level

  Entry level

Employment type

• Employment type

  Part-time

Job function

• Job function

  Health Care Provider

• Industries

  Higher Education

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